About a Boy: A New York family struggles to give their son a 'normal life'

[Originally published in the New York Press]
Writer Joe Pompeo
Photography Nicole Caldwell
[Photo caption: Despite suffering from rare genetic disorder, Hunter Cavanaugh, 6, smiles and plays like most boys his age. More photos here.]

The tracheostomy tube is one of the things that really makes Hunter different from the other kids. Inserted through a small hole in his neck, it creates an airway amid the tumors that clog his throat. He can’t breathe without it.

Then there is the gastric feeding tube that attaches to a hole in Hunter’s stomach, providing him with the nutrients he is unable to swallow. Though he’s recently been able to start drinking small bits of water, at age six, Hunter has never eaten a piece of food.

Read the rest of this article here.